The articles below are of of special interest to me
because my relative died of the condition soon after birth.
He had Hirschsprung’s Disease with Congenital Central Hypoventilation Syndrome
Links compiled by Nancy Allen
British Boy Can't Fall Asleep Without Fear of Dying
Congenital Central Hypoventilation Syndrome
or Ondine's Curse
Congenital Central Hypoventilation Syndrome
Central Hypoventilation Syndrome, Congenital; CCHS
Ondine-Hirschsprung Disease, Haddad Syndrome
Congenital Central Hypoventilation Syndrome
Congenital Central Hypoventilation Syndrome and
Hirschsprung's Disease, Haddad Syndrome
PHOX2B Genotype Allows for Prediction of Tumor Risk in
Central Hypoventilation Syndrome
Congenital Central Hypoventilation Syndrome (CCHS)
Offers Clues to SIDS, Sleep Apnea
Some have brain damage in the article
Congenital Central Hypoventilation Syndrome and Hirschsprung's Disease